‘I’m still waiting for him to call me mum’: Woman who left job to take care of 9-year-old son with rare Angelman syndrome, Singapore News


Chen Yuanqin is even now ready for her son Chace to connect with her ‘mum’.

This hopeful mom, you see, has been ready for a extended nine many years now.

In a YouTube video shared by Lianhe Zaobao on Sunday (May possibly 8), the 37-year-old Singaporean quipped: “I’ve been telling him, ‘the instant you call me mum, I am going to instantly invest in a flight ticket and provide you overseas’.

“I have been indicating to him for a number of a long time now, I am nevertheless waiting. [I can only] hope.”

Chace has Angelman syndrome, a affliction that he was diagnosed with at 18-months-old about eight years in the past. 

Chen recalled: “I recall our household was out for supper that day. When I observed the contact from the neurologist, I felt incredibly uneasy.

“When I was informed [that Chace has Angelman syndrome], I went again house and cried with my spouse.”

https://www.youtube.com/look at?v=wW346IfKfto&t=145s

Influencing one particular in 15,000 stay births around the globe, Angelman syndrome leads to mental incapacity, difficulties with speech and advancement and seizures, according to Mayo Clinic.

Folks with this uncommon genetic condition are also prone to repeated smiling and laughing. 

In the 8-moment clip, Chen explained that she was a preschool trainer but she resigned three years ago, devoting herself to be a complete-time caregiver to Chace while her spouse works full-time to deliver for the household.

This parenting journey has not been an uncomplicated just one for the spouse and children. 

There were more awkward encounters in general public with Chace than really feel-fantastic tales of fantastic Samaritans assisting her, she added.

For instance, there would be times commuters would be annoyed with Chace if he normally takes too very long to board a bus.

“In the earlier, I would endure when other folks address my son like that. Keep it in until my young ones are asleep, then I would cry uncontrollably,” said Chen.

But now, she’s determined not to allow everyone “bully her son”.

“I have to have the braveness [to] carry him out. He deserves to see the planet just like us,” she mentioned.

Chen has two other children, an 11-calendar year-aged boy and a new child lady.


With Angelman syndrome, Chace faces troubles in swallowing meals effectively and this has led to heartbreaking moments throughout mealtime, his mother shared.

Describing how she has to pressure-feed her son inspite of his shouts and screams, Chen claimed: “I you should not want him to come to feel agony, but there’s no decision.

“[Chace] would not want to open his mouth to eat (fearing he could possibly choke on his food items). If he’s hungry, he’ll commence throwing tantrums all working day, and it is really rather pitiful since he won’t know how to effectively categorical himself.”

According to Chen, Chace currently undergoes 3 types of treatments – physiotherapy, occupational treatment to enhance his capability to complete each day duties independently, and speech treatment.

Has Chen at any time regretted her choice give up almost everything, which includes her comprehensive-time work, to consider care of Chace?

“I ask myself that issue several instances,” she reported. “Even when I am fatigued and disappointed with myself, I’ve always experienced no regrets. [Chace] delivers us so much joy… When I’m upset, he would continue to keep on smiling. It is a reminder for us to smile too.”

ALSO Read through: Doctors dismissed her problems, loved ones persuaded she was paranoid: Just one mum’s journey on caring for her autistic twin daughters

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